M. Cuttini et al., THE EURONIC PROJECT - A EUROPEAN CONCERTED ACTION ON INFORMATION TO PARENTS AND ETHICAL DECISION-MAKING IN NEONATAL INTENSIVE-CARE, Paediatric and perinatal epidemiology, 11(4), 1997, pp. 461-474
The paper presents the background, objectives and methods of a Europea
n concerted action project aimed at exploring the transmission of info
rmation to parents and the ethical decision-making process in neonatal
intensive care from the perspective of health personnel, and in relat
ion to the legal, cultural, social and ethical backgrounds of the vari
ous European countries. Eight countries are taking part in the project
(France, Germany, Italy, Luxembourg, Spain, Sweden, The Netherlands a
nd the United Kingdom), which is about to be extended also to Central
and Eastern Europe (Estonia, Lithuania and Hungary). In each of them,
the medical and nursing personnel of a number of randomly selected uni
ts will be interviewed through an anonymous, self-administered questio
nnaire. Information on the organisation and policies of the Units and
on the national legislation will also be collected. The key features o
f the study lie in the multidisciplinary and international approach, t
he random selection of the sample as a guarantee of representativeness
and lack of selection bias, the focus on the staff practices as well
as on their attitudes and opinions.