Ca. Stiller et al., CHILDHOOD-CANCER IN BRITAIN - THE NATIONAL REGISTRY OF CHILDHOOD TUMORS AND INCIDENCE RATES 1978-1987, European journal of cancer, 31A(12), 1995, pp. 2028-2034
The National Registry of Childhood Tumours contains population-based d
ata on childhood cancers diagnosed throughout Great Britain from 1962
onwards. This paper describes the methodology of the Registry, present
s incidence rates for 1978-1987 and describes other uses of the data.
Total age-standardised annual incidence was 118.3 per million. The mos
t frequent diagnostic groups were leukaemias (age-standardised rate 39
.8), brain and spinal tumours (27.0), lymphomas (11.1), sympathetic ne
rvous system tumours (8.3), kidney tumours (7.7) and soft-tissue sarco
mas (7.5). Incidence rates were similar to those reported from other W
estern industrialised countries. The data are also used for a wide ran
ge of epidemiological and other studies. These include analyses of geo
graphical variations in incidence, trends in survival, health of long-
term survivors and their offspring and the genetics of childhood cance
r. Information is frequently provided for clinicians and research work
ers, and series of specific types of cancer are compiled for further s
tudy. The Registry depends for the completeness and accuracy of its da
ta on a wide range of organisations and individuals, and it is essenti
al that this cooperation continues if the Registry is to be maintained
.