The purpose of this study was to explore the hypothesis that women wit
h breast cancer had specific preferences about the degree of control t
hey, wanted over treatment decision making. One hundred fifty women, n
ewly diagnosed with breast cancel; were interviewed and their preferen
ces for participation in treatment decision making were established us
ing a measurement tool designed to elicit decision-making preferences
(Degner LF, Sloan JF. Decision making during serious illness. What rol
e do patients really want to play? J Clin Epidemiol 1992,45:944-50). T
wo hundred women with benign breast disease served as a descriptive co
mparison group. Unfolding theory (Coombs CH. A theory of data. New Yor
k: John Wiley & Sons, 1964) provided a means of analyzing the data so
that the degree of control preferred by each woman could be establishe
d The majority of the newly diagnosed women preferred to play a passiv
e role in treatment decision making. leaving the decision-making respo
nsibility to their physician, whereas the benign control group preferr
ed a collaborative role in which joint decisions could be made between
the patient and the physician. The implications of the results for pa
tient participation are discussed.