Kg. Macdonald et al., A SOCIOBEHAVIOURAL PERSPECTIVE ON GENETIC TESTING AND COUNSELING FOR HERITABLE BREAST, OVARIAN AND COLON-CANCER, CMAJ. Canadian Medical Association journal, 154(4), 1996, pp. 457-464
Testing for susceptibility to heritable breast, ovarian and colon canc
er has unique psychosocial costs. Negative test results may not be suf
ficient to relieve anxiety, and positive results can cause sufficient
distress to compromise patient compliance with surveillance and risk r
eduction measures. More needs to be learned about how sociocultural fa
ctors affect the understanding of risk, how decisions to undergo testi
ng are made and how information about increased risk affects family dy
namics. As the demand for testing and counselling grows, health care p
roviders will be faced with new challenges and dilemmas. A better unde
rstanding of genetics by the public is needed to mitigate deterministi
c attitudes that can lead to the neglect of health promotion. Also of
concern are the socioeconomic implications of being identified as havi
ng a high risk for heritable cancer and the dangers inherent in using
genetics to explain sociological phenomena. Health care providers must
take the lead in ensuring that developments in genetics are used to t
he benefit of all.