Cw. Thain et B. Gibbon, AN EXPLORATORY-STUDY OF RECIPIENTS PERCEPTIONS OF BONE-MARROW TRANSPLANTATION, Journal of advanced nursing, 23(3), 1996, pp. 528-535
Bone marrow transplantation (BMT) is now an established form of treatm
ent for a wide range of malignant and non-malignant diseases. Research
has led to understanding and effective treatment of many side-effects
of BMT, However, relatively little is known about how patients' perce
ive BMT, and how they view their experiences during transplantation. T
he purpose of this study was to describe the perceptions of a small gr
oup of BMT recipients, Audio-taped interviews were undertaken with six
recipients of BMT who were well and in remission, This provided in-de
pth descriptive data of these individuals' experiences, which were ana
lysed using latent content analysis, Five broad categories were identi
fied under which data were grouped and discussed: mortality and death;
luck; 'prison' (protective isolation); relationships; and physical ef
fects. These revealed that patients attached relatively little importa
nce to the physical effects of BMT, possibly because of the effectiven
ess of treatment. However, this led to a focus on other concerns, whic
h the categories reflect. The importance of family members, particular
ly spouses, in sharing the burden of BMT, and the strengthening of fam
ily relationships were highlighted, The value of nurses was also empha
sized. Protective isolation was found to be a stressor in two differen
t ways. All of those interviewed reported concern with thoughts of the
ir own mortality and possible death before and during BMT. Recommendat
ions for nurses working in BMT units and suggestions for the direction
of future research are made.