NEEDS OF DISABLED-CHILDREN AND THEIR FAMILIES

In the new NHS those who provide services for disabled children need t o measure and demonstrate their effectiveness, but there are no easily available outcome measures for use by child development centres and t eams. The development of an alternative approach, using a series of st atements of good practice, is described. Parents of children with cere bral palsy were asked to participate in semistructured interviews, to ascertain the value and relevance of these quality statements. Parents were most concerned about the standard of news breaking and early fol low up, the sharing of information, and the supply and repair of equip ment. The findings were used to modify the quality checklist and it is proposed that this should form the basis of a 'charter for disabled c hildren and their families'.