T. Heller et al., GUIDELINES FROM THE CONSUMER - IMPROVING CONSUMER INVOLVEMENT IN RESEARCH AND TRAINING FOR PERSONS WITH MENTAL-RETARDATION, MENTAL RETA, 34(3), 1996, pp. 141-148
Consumer involvement of individuals with mental retardation in researc
h and training was assessed. Twenty-two subjects with experience in re
search and/or training were interviewed to determine how professionals
can encourage meaningful participation of persons with mental retarda
tion in research and training activities. Results suggest that persons
with mental retardation have participated in various roles in researc
h and training but that there are many barriers to meaningful consumer
involvement that have not been adequately addressed. Guidelines for p
rofessionals to foster meaningful consumer involvement in research and
training activities were provided.