Attorneys, philosophers, bioethicists and health care professionals ha
ve vigorously debated how much state control there should be over an i
ndividual's or family's decision to discontinue life-sustaining treatm
ent. Where treatment of a minor is involved, the debate becomes even m
ore complex. The purposes of this study were to identify cases involvi
ng the withdrawal of life-sustaining treatment in children, to describ
e the legal response to, and the management of, these cases, to examin
e variables that influence decision making, and to determine what lega
l-ethical standards are used and how they are applied. In addition, th
e author reviewed the literature on children's understanding of death
and competence to participate in treatment decision making and applied
those findings to argue for greater involvement of children in decisi
on making related to the use of life-sustaining treatment.