Clinical experiences have indicated that family planning is affected b
y childhood leukemia. To investigate this issue, 130 mothers and fathe
rs of 68 families with a long-term disease-free survivor were studied
using interviews and questionnaires concerning the effects of childhoo
d cancer on family planning. In one third of the families, either one
or both partners reported that their child's disease affected their re
productive planning in various ways. The most extreme variations inclu
ded having completed the family before diagnosis but still having anot
her child versus not having completed the family before diagnosis but
refraining from further progeny. More than half of the affected famili
es refrained from having further offspring, delineating psychological
motives for their decision. For parents whose family planning is affec
ted by their experiences with childhood leukemia, the decision-making
process is an extra burden. Therefore we advocate that support for the
parents of a child with cancer should include counseling on progeny,
in which both genetic and psychological information should be provided
.