Lj. Kristjanson et al., FAMILY MEMBERS PERCEPTIONS OF PALLIATIVE CANCER CARE - PREDICTORS OF FAMILY FUNCTIONING AND FAMILY MEMBERS HEALTH, Journal of palliative care, 12(4), 1996, pp. 10-20
We studied family members' care experiences during the palliative care
phase as predictors of family members' health and family functioning
during the palliative care phase and three months following the death
of the patient. Eighty family members of advanced cancer patients part
icipated in the study at time one (T1) (palliative care phase) and 64
family members completed the data collection protocol at time two (T2)
(three months bereavement). Data were also obtained from 36 of the pa
tients within one month of their deaths. Fulfillment theory accounted
for 31% of the variance in family care satisfaction and Discrepancy th
eory accounted for 72% of the variance in family care satisfaction. Di
screpancy theory predicted family functioning in the bereavement perio
d (r=-0.33, p<0.05). Patients' quality of life scores were moderately
correlated with family members' health during the palliative care phas
e (r=-0.38, p<0.05). Family members' scores on the health index (sympt
om of stress scale) were significantly lower (p<0.05) than normative s
cores reported in a study using a healthy population. The strongest pr
edictor of family members' health scores in the bereavement period was
their health score at T1 (r=0.71, p<0.01). As well, family functionin
g at T1 was strongly correlated with family functioning at T2.