CAPTURING AND USING CLINICAL OUTCOME DATA - IMPLICATIONS FOR INFORMATION-SYSTEMS DESIGN

There is an urgent need to capture and record data related to clinical outcomes, but there are many barriers. The range of problems includes lack of agreement on conceptualization of the term ''outcome,'' inade quate measures of outcomes, and inadequate information systems to capt ure and manipulate data that would reflect outcomes. This article focu ses on information system requirements to capture, store, and utilize clinical outcome data. For greatest accuracy, outcome data should be c aptured as close to the source as possible, including direct data capt ure from patients themselves and from their families. To make maximum use of outcome data, systems must be designed to 1) store data in mult ipurpose databases; 2) share data across different platforms; 3) link outcome data to other data that might influence or explain outcomes; 4 ) allow querying of the data by authorized personnel; and 5) protect p atient confidentiality.