The health-related beliefs and behaviors of long-term survivors of chi
ldhood cancer are important because of vulnerability to adverse late e
ffects from their primary malignancy and its therapy. A health behavio
r survey was completed by 110 parents of longterm survivors ranging in
age from 11-77 years, and by 40 adult long-term survivors of childhoo
d cancer ranging in age from 18-29 years. The survey included question
s on the former patient's frequency of alcohol and tobacco use, as wel
l as diet, exercise, sleep, dental, and seatbelt habits. The reported
prevalence of tobacco and alcohol use was less than 10% among those le
ss than 18 years old. Among the adults, tobacco (17.5%) and alcohol (7
2.5%) use was greater, but problem drinking was infrequently reported.
In order to assess their perceived vulnerability, we asked the parent
s and the young adult patients to rate the strength of their belief th
at it is more important for the patient to keep healthy compared to mo
st other children or young adults. Contrary to our expectations, demog
raphic factors such as the patient's gender, socioeconomic level, or t
ime elapsed since completion of therapy exerted minimal influence on t
heir responses. Over 80% of parents and 60% of young adult survivos be
lieved that it was more important for the former patient to remain hea
lthy compared to most other people. However, this shared belief in inc
reased vulnerability was inconsistently expressed in the patient's hea
lth behaviors. These results suggest that specific changes are needed
in the health assessment and education of long-term survivors of child
hood cancer. (C) 1995 Wiley-Liss, Inc.