M. Kelner, ACTIVISTS AND DELEGATORS - ELDERLY PATIENTS PREFERENCES ABOUT CONTROLAT THE END OF LIFE, Social science & medicine, 41(4), 1995, pp. 537-545
Citations number
18
Categorie Soggetti
Social Sciences, Biomedical","Public, Environmental & Occupation Heath
The views of elderly patients concerning control over the dying proces
s are explored in this paper. Thirty-eight hospitalized elderly patien
ts were interviewed about their attitudes, both general and personal,
toward exerting control over end-of-life decisions. A majority (27) of
the participants could be categorized as 'activists', that is, they p
referred to have a voice in decision-making at the end of life. There
were also a number of 'delegators' (11) in the study. They preferred t
o delegate the decision-making to their physicians, to God, or to fate
. Activists were better educated, had held more professional and manag
erial jobs and tended more often to be middle class rather than lower
class. Their advanced sophistication about consumer rights and their g
eneral knowledge of health issues is reflected in their greater intere
st in patient control over dying. Most activists rejected the idea of
euthanasia or assisted suicide for themselves, but favoured the withho
lding and withdrawing of treatment. It is possible that these ideal ty
pes of 'activists' and 'delegators' could anchor a continuum that is m
easurable. Such a scale could facilitate the differentiation of the el
derly on this issue and thereby prove useful in the development of app
ropriate policy.