To date, guidelines and consensus reports on quality care for asthma a
nd chronic obstructive pulmonary disease (COPD) are mainly based on re
search and opinions of care providers. Patients' viewpoints on good me
dical care have rarely been studied. We designed a postal questionnair
e to study the needs of patients with asthma or COPD for medical care
provided by general practitioners and lung physicians. A total of 121
patients filled out the questionnaire, which included 111 items about
needs. Although generally satisfied, patients reported several unfulfi
lled needs. Main topics were the need for information about diagnostic
tests, prognosis, and long-term use of medication. In addition, patie
nts wanted more written information about the nature of their disease.
One-third of patients wanted more participation in decisions about th
eir treatment. These results suggest the quality of medical care for p
atients with asthma or COPD can be improved by adjusting provided care
to needs expressed by patients.