Jewm. Vandongenmelman et al., LATE PSYCHOSOCIAL CONSEQUENCES FOR PARENTS OF CHILDREN WHO SURVIVED CANCER, Journal of pediatric psychology, 20(5), 1995, pp. 567-586
Investigated late psychosocial sequelae in 133 parents of children who
survived cancer, using questionnaires developed To measure the specif
ic impact of the disease. Childhood cancer had distinct and persistent
late psychosocial effects on parents of survivors, Uncertainty and lo
neliness were the most reported problems, Demographic and situational
characteristics such as being a mother, low SES, no religious affiliat
ion, chronic disease in a family member other than the child surviving
cancer, and concurrent stresses increased the risk of reporting late
problems. Treatment itself had little or no effect on reported problem
s, However, when treatment led to long-term sequelae in the child, a s
ignificant and specific effect on parental problems was observed. No d
ecline of problems over time was found, which has implications for pat
ient care.