The health status of 48 survivors of cancer was assessed using a ratin
g system for six attributes: senses, mobility, emotion, cognition, sel
f care, and pain. Paired assessments were made by doctors and patients
(or their parents, or both) at routine clinic attendances. Sixteen (3
3%) assessments by the patient/parent and 19 (40%) assessments by the
doctor identified no deficits in health status. The doctors identified
fewer deficits in all attributes than the patients/parents, the diffe
rences being most marked for subjective attributes. Health status inde
x scores on a scale of 0 (worst health state) to 1 (perfect health) we
re derived from the rating system and showed good overall agreement be
tween the doctors and the patients/parents. Survivors of neuroaxial tu
mours tended to have lower scores than other diagnostic groups. This s
imple, compact system could be used in clinical trials to compare trea
tment strategies in terms of the health status of survivors. It could
also be a valuable tool in the assessment of health status in other ar
eas of paediatrics.