Rm. Pauli et al., WISCONSIN STILLBIRTH SERVICE PROGRAM .1. ESTABLISHMENT AND ASSESSMENTOF A COMMUNITY-BASED PROGRAM FOR ETIOLOGIC INVESTIGATION OF INTRAUTERINE DEATHS, American journal of medical genetics, 50(2), 1994, pp. 116-134
Although stillbirth is a common event, few programs have previously be
en established for the comprehensive etiologic investigation of intrau
terine death. Fewer still have been prospective, unbiased in ascertain
ment, and consistent in protocol utilization. The Wisconsin Stillbirth
Service Program was established in 1983 as a unique model for the inv
estigation of the causes of stillbirth. This community-based, Universi
ty-supported model for health care delivery is here described. Through
it more than a thousand infants have been etiologically investigated.
We demonstrate that a community-based program of stillbirth assessmen
t can succeed, that compliance with recommended protocols is high and
that a specific primary cause of fetal death can be demonstrated in ab
out 40% of referrals. A majority of the established causes of intraute
rine death are fetal etiologies. Furthermore, it appears that there ar
e no substantial referral biases. Lack of such biases, together with t
he prospective, protocol driven nature of the program provides a uniqu
e population upon which to base estimates of the frequency of various
etiologic diagnoses and classes and categories of cause. (C) 1994 Wile
y-Liss, Inc.