H. Skirton et al., THE ROLE AND PRACTICE OF THE GENETIC NURSE - REPORT OF THE AGNC WORKING PARTY, Journal of Medical Genetics, 34(2), 1997, pp. 141-147
The role of the genetic nurse has evolved historically with the emerge
nce of clinical genetics in the field of health care. During 1994, a P
ractice Working Party was convened by the Genetic Nurses and Social Wo
rkers Association in response to discussion about the role of the nurs
e within and between regional genetics centres. The Working Party cond
ucted a study of the current nursing practice and attitudes of nurses
and clinicians to the nursing role, as a basis for future discussion a
nd planning for educational needs. This paper describes the role of th
e genetic nurse within the United Kingdom and offers suggestions for a
ssessment of competency. Strong themes emerging from respondents' comm
ents include the need and desire for multi-professional team work, and
it is apparent that most respondents felt the families' needs would b
est be served by a skilful combination of medical and nursing input, r
ather than adherence to traditional roles.