PSYCHOSOCIAL ADJUSTMENT IN LONG-TERM SURVIVORS OF CHILDHOOD MEDULLOBLASTOMA AND EPENDYMOMA TREATED WITH CRANIOSPINAL IRRADIATION

Improved prognosis for pediatric brain tumors has stimulated research into the quality of life of survivors. To assess cognitive function an d psychosocial and family adjustment among this population, 18 long-te rm survivors of childhood medulloblastoma or posterior fossa ependymom a treated with surgical resection and craniospinal irradiation were in terviewed and administered achievement tests and psychosocial question naires. A majority of parents reported significant difficulty caring f or their child with a brain tumor, but no significant adverse effects upon the family. Academic achievement was significantly impaired in 12 /18 subjects. Psychosocial adjustment was normal in 10/18 subjects. Al though specific treatment variables (radiation dosage, chemotherapy, e tc.) were not significantly related to these two outcome measures, imp aired academic achievement was correlated with young age at diagnosis (p < 0.05) and impaired psychosocial adjustment was correlated with gr eater time since diagnosis (p < 0.05). Overall quality of life reporte d by these individuals appears to be acceptable but neuropsychological and psychosocial examination is clearly indicated as part of the foll ow-up program.