M. Goldacre et al., ESTIMATING INCIDENCE AND PREVALENCE OF TREATED PSYCHIATRIC-DISORDERS FROM ROUTINE STATISTICS - THE EXAMPLE OF SCHIZOPHRENIA IN OXFORDSHIRE, Journal of epidemiology and community health, 48(3), 1994, pp. 318-322
Study objective - To use routine statistical records to estimate the i
ncidence and prevalence of treated schizophrenia. Design and setting -
Analysis of linked records in Oxfordshire (population 540000) for all
people in contact with specialist psychiatric services from 1975-86.
Subjects - Records of 685 people with a diagnosis of schizophrenia as
an inpatient and a further 294 people who received specialist psychiat
ric care for schizophrenia outside hospital without any record of inpa
tient care. Measurements and main results - The measures most commonly
recorded in psychiatric statistics, first admission rates for people
in whom schizophrenia was recorded at their first psychiatric admissio
n, were 8.7 per 100000 males and 5.6 per 100000 females. First contact
rates for people in whom schizophrenia was recorded at any time in th
e study period and in any setting were 15.1 per 100000 males and 11.4
per 100000 females. Whichever patient population was analysed, the bro
ad profile of schizophrenia by age, sex, and calendar time was similar
. Conclusions - First admission rates for schizophrenia, as identifiab
le in current routine information systems, are useful indicators of th
e general pattern of disease but are inadequate absolute indicators of
treated incidence. These data are limited to the first ever contact.
Reliable information about the treated incidence of disease requires i
nformation systems which incorporate information about when and where
each diagnosis was first made. Reliable information about treated prev
alence requires systems which also incorporate data about death, recov
ery, and migration into and out of the study population.