Jb. Knowles et N. Gilmore, DISCONTINUATION OF TOTAL PARENTERAL-NUTRITION IN A PATIENT WITH ACQUIRED-IMMUNODEFICIENCY-SYNDROME - A CANADIAN PERSPECTIVE, Nutrition reviews, 52(8), 1994, pp. 271-274
Provision of nourishment to terminally ill patients has been a controv
ersial topic in clinical medicine. Determination of the limits of pall
iative care requires an understanding of the disease process, as well
as the boundaries of patient self-determination. With the advent of li
ving wills, the determination of the patient to limit care, including
nutrition support, has become socially acceptable. Difficulties arise
when there are differences of opinion between the caregiver and the pa
tient The solutions to these conflicts are often decided in the courtr
oom, as demonstrated by the Cruzan(1) and Quinlan(2) cases. Living wil
ls are often written to prevent unnecessary financial burdens in hopel
ess situations. As well, financial considerations influence the decisi
ons made by caregivers in providing care to terminally ill patients. T
he following case report illustrates the conflict between patient self
-determination and limitation of care for financial reasons. The use o
f substituted judgment within the Canadian health care system and the
role of team meetings to resolve ethical decisions are discussed.