Wfj. Feitz et al., OUTCOME ANALYSIS OF THE PSYCHOSEXUAL AND SOCIOECONOMIC-DEVELOPMENT OFADULT PATIENTS BORN WITH BLADDER EXSTROPHY, The Journal of urology, 152(5), 1994, pp. 1417-1419
Since sonographic evaluation of the fetus became routine, prenatally e
stablished diagnosis of multiple or severe malformations raises the qu
estion of whether a pregnancy should be terminated. To answer this que
stion properly, all aspects concerning the life of a child born with a
serious malformation, such as exstrophy of the bladder, must be consi
dered. Therefore, more than ever an evaluation of the quality of life
of these patients is necessary to be able to make a solid based decisi
on. We studied the psychosexual and socioeconomic development of 22 ad
ult exstrophy patients (11 men and 11 women) by a standardized persona
l interview, evaluation of a standard performance test SCL-90 (symptom
checklist 1990) and an adapted personality score test. The latter 2 t
ests are well established and provide reproducible results. Based on s
everal large scale investigations, standard scores are available. Nine
women (82%) and 10 men (91%) scored better or in accordance with the
standard scores. Exstrophy of the bladder does influence the psychosex
ual and socioeconomic development. The quality of life is hardly ever
considered so poor that termination of pregnancy is a realistic altern
ative.