A case of steroid-resistant nephrotic syndrome with focal segmental gl
omerulosclerosis leading to renal failure in a 4-year-old girl is desc
ribed by her mother, with special emphasis on the problems resulting f
rom recurrence of this disease, with graft loss in three successive ki
dney transplants. This report chronicles the gradual evolution from a
family's initial heavy dependence upon medical solutions to their ulti
mate primary emphasis upon spiritual values, with medicine seen as the
support toward achieving the child's psychological well-being and spi
ritual growth. The physician's role in balancing medical decision maki
ng, non-medical alternatives, and demands on limited and precious reso
urces in such difficult cases is discussed.