To investigate the severity, sources, and means used to cope with the
distress experienced by haemophilia nurses as a result of the widespre
ad infection with Human Immunodeficiency Virus among haemophiliacs, we
collected anonymous questionnaire data from all nurses in the Haemoph
ilia Nursing Network Directory, compiled by the National Haemophilia F
oundation in June, 1990. Questionnaires were returned by 136 of the 18
1 (75%) nurses in the sample. Over 50% of the sample gave distress res
ponses to 15 of 44 statements. Areas associated with the greatest dist
ress were: (1) Failure of Patients to take steps to prevent transmissi
on of HIV; (2) Fear of getting infected, and (3) the repeated loss exp
erienced as patients died from infection. Nurses working with haemophi
liacs for 11-15 years were particularly vulnerable to feelings of guil
t for having participated in the treatment that resulted in HIV infect
ion. Fear of contagion and distress from patient deaths were mutually
exclusive ways of reacting to HIV in haemophiliacs. Looking for a new
job was related to all major sources of distress. Interaction with pee
rs was perceived as being the most useful source of emotional support.