Parenting stress among mothers of Malaysian children with cerebral palsy: predictors of child- and parent-related stress

A hospital study was carried out to compare parenting stress among 87 Malay sian mothers of children with cerebral palsy and a control group (comprisin g 87 mothers of children without disability who attended the walk-in paedia tric clinic), using the Parenting Stress Index (PSI) questionnaire. Multipl e regression analysis was used to determine socio-demographic and medical f actors associated with child-domain stress (CDS) and parent-domain stress ( PDS). Mothers of children with cerebral palsy scored significantly higher t han control subjects on all sub-scales of CDS and PDS (p< 0.01), except for the sub-scale of 'role restriction'. The presence of cerebral palsy (p < 0 .001) and activities of daily living (ADL) scores (p<0.001) were significan tly associated with CDS. Factors predictive of PDS were ADL scores (p<0.001 ), number of hospitalizations over the past year (p=0.024), level of matern al education (p = 0.018) and Chinese mothers (p < 0.001). Although this stu dy demonstrated that Malaysian mothers of children with cerebral palsy expe rienced higher levels of stress than controls, the impact of cerebral palsy per se on parenting stress was modified by other factors such as increased care-giving demands, low maternal education and ethnic background. Habilit ation should be directed at easing the burden of daily care, minimizing hos pital re-admissions and targeting appropriate psychosocial support at speci fic subgroups to change parental perception and expectations.