A new model of advance care planning - Observations from people with HIV

Background: Although theoretical concepts from ethics and law have been app lied, there is no conceptual model of advance care planning rooted in the p erspective of individuals engaged in it. Objective: To develop a conceptual model of advance care planning by examin ing the perspectives of individuals engaged in it. Methods: In this qualitative research, we studied 140 individuals with huma n immunodeficiency virus (HIV) or acquired immunodeficiency syndrome who we re engaged in advance care planning. Respondents' experience with and opini ons about advance care planning were noted in interviews that were audiotap ed, transcribed, and analyzed. Results: The primary goal of advance care planning was to prepare for death , which entailed facing death, achieving a sense of control, and strengthen ing relationships. Conclusions: We have developed a conceptual model of advance care planning rooted in the perspectives of individuals engaged in it. The model has impl ications for theory, research, and practice regarding end-of-life care.