The information concerns of spouses of women with breast cancer: patients'and spouses' perspectives

A user-centred study employing focus group methodology was conducted in the United Kingdom in order to establish the key information concerns of spous es of women with breast cancer from both patients' and spouses' perspective s. Four unstructured focus group discussions were convened, three with wome n with breast cancer (n = 11, n = 7 and n = 12) and one with spouses (n = 9 ), The discussions were audio-taped and transcribed in full. All transcript s were analysed manually using theme analysis and considered patterns commo n to the data, Themes were established and corresponding quotations used to support all themes, Emergent themes were grouped into the following catego ries: information needs of spouses; sources of information for spouses; and family information. Several important points emerged within each of these categories and these are discussed. Validity was established by participant evaluation of the findings. Findings clearly indicate the key information concerns of spouses from patients' and spouses' perspectives. These finding s are of value to health care professionals and have a number of nursing im plications. The study also highlights particular areas where further resear ch and development are needed.