Context Patients with the greatest health care needs may have the least abi
lity to read and comprehend information needed to function successfully as
patients.
Objective To examine the scope and consequences of poor hearth literacy in
the United States, characterize its implications for patients and physician
s, and identify policy and research issues.
Participants The 12 members of the Ad Hoc Committee on Health Literacy, Ame
rican Medical Association Council on Scientific Affairs, were selected by a
key informant process as experts in the field of health literacy from a va
riety of backgrounds in clinical medicine, medical and health services rese
arch, medical education, psychology, adult literacy, nursing, and health ed
ucation.
Evidence Literature review using the MEDLINE database for January 1966 thro
ugh October 1, 1996, searching Medical Subject Heading (MeSH) reading combi
ned with text words health or literacy in the title, abstract, or MeSH. A s
ubsequent search using reading as a search term identified articles publish
ed between 1993 and August 1998. Authors of relevant published abstracts we
re asked to provide manuscripts. Experts in health services research, healt
h education, and medical law identified proprietary and other unpublished r
eferences.
Consensus Process Consensus among committee members was reached through rev
iew of 216 published articles and additional unpublished manuscripts and te
lephone and Internet conferencing. All committee members approved the final
report.
Conclusions Patients with inadequate health literacy have a complex array o
f communications difficulties, which may interact to influence health outco
me. These patients report worse health status and have less understanding a
bout their medical conditions and treatment. Preliminary studies indicate i
nadequate health literacy may increase the risk of hospitalization. Profess
ional and public awareness of the health literacy issue must be increased,
beginning with education of medical students and physicians and improved pa
tient-physician communication skills. Future research should focus on optim
al methods of screening patients to identify those with poor health literac
y, effective health education techniques, outcomes and costs associated wit
h poor health literacy, and the causal pathway of how poor health literacy
influences health.