The aim of this study was to obtain and assess the range of expression
s used by breathless patients to describe their subjective experience.
At interview, 80 patients with respiratory, oncology or cardiac diagn
oses provided 63 descriptions of breathlessness. These were sorted acc
ording to similarity of meaning by expert health professionals and jud
ged for frequency and severity. Results derived from a series of multi
variate analyses on the descriptions and their weightings confirmed 4
classes of breathlessness containing 14 important groups. Most importa
nt were the 8 main physical sensations of breathlessness. A second aff
ective and evaluative class contained 3 groups of descriptors. Two min
or classes showed low energy in the third, and a fourth with two disti
nct qualities of hyperventilation and speechlessness. The results prov
ide a foundation for the development of a psychometric instrument whic
h could be used to assess breathlessness in the clinic.