Fg. Davis et al., THE RATIONALE FOR STANDARDIZED REGISTRATION AND REPORTING OF BRAIN AND CENTRAL-NERVOUS-SYSTEM TUMORS IN POPULATION-BASED CANCER REGISTRIES, Neuroepidemiology, 16(6), 1997, pp. 308-316
Most population-based statistical reports of brain and central nervous
system (CNS) tumors are limited to data of primary malignant tumors a
nd to summary estimates of all tumor locations and histologies. We arg
ue that data of benign brain and CNS tumors should also be included in
registry reports and that standard definitions for the reporting of a
ll brain and CNS tumors by site and histology should exist, We demonst
rate current inconsistencies in the definitions of brain and CNS tumor
sites used in reports, Grouping of brain and CNS tumors by subtype -
which integrates the current World Health Organization classification
scheme with the International Classification of Diseases for Oncology
coding system used in cancer registries - is proposed, Adoption of sta
ndard tumor site and behavior codes for annual reports would aid the c
omparison of rates of brain and CNS tumors between geographic regions,
allow for the evaluation of trends over time, and provide new estimat
es of tumor subtypes in a more clinically relevant format, A consensus
among cancer registries and neuroscientists is needed to adopt standa
rd definitions so that accurate and clinically relevant brain and CNS
tumor data are available.