DEFINING AND MEASURING OUTCOMES IN END-STAGE DEMENTIA

Dementia is a life-defining illness that impacts both patients and the ir loved ones. For dying patients with dementia, there are important a nd meaningful outcomes that reflect the quality of care. The authors p ropose 13 domains to examine the quality of care and make the argument that for these patients and their families, measures of satisfaction and patient or family reports of specific events may be the most impor tant markers of the quality of care.