Rl. Sowell et al., RESTRUCTURING LIFE TO FACE THE FUTURE - THE PERSPECTIVE OF MEN AFTER A POSITIVE RESPONSE TO PROTEASE INHIBITOR THERAPY, AIDS patient care, 12(1), 1998, pp. 33-42
This article describes a qualitative study that explores the psychosoc
ial changes and care delivery issues experienced by men with AIDS who
were facing end-stage disease but then had dramatic physical improveme
nt as a result of protease inhibitor therapy. In-depth interviews were
conducted with 11 men with HIV/AIDS drawn from a community-based AIDS
service organization in a large metropolitan area in the Southeast. U
sing Collaizi's model of content analysis, three broad categories, pro
tease inhibitors as a reprieve, changed roles and relationships, and n
eed for advocacy and support, emerged from the data. From the three br
oad categories, seven more specific themes were identified: guarded op
timism, buying time, change in relationships, work versus disability,
access to medications, access to HIV/AIDS competent health care, and f
ocused support services. Collectively, the phenomenon resulting from t
hese men's experiences and concerns can be described as efforts to res
tructure life to face a future they did not expect. These findings sup
port the need for developing formal, structured interventions to help
persons living with AIDS (PLWA) to restructure their lives as new anti
retroviral therapies promote improvements in health.