PUBLIC RESEARCH, PRIVATE CONCERNS - ETHICAL ISSUES IN THE USE OF OPEN-ENDED INTERVIEWS WITH PEOPLE WHO HAVE LEARNING-DIFFICULTIES

This paper is an exploration of the ethical dilemmas in open-ended int erview research with people with learning difficulties. We address the possibility that research which gives voice to the experience of abus e, from the viewpoint of the victim, can itself be abusive. Such resea rch is justified in terms of empowering, illuminating and disseminatin g the meaning that participants give to their lives. Yet every stage o f the process raises complex ethical issues when research participants are drawn from vulnerable and powerless groups in society, and the fo cus for investigation can be deemed private. As a vehicle for our expl oration, we reflect on our ethical dilemmas in researching the story o f a young woman who has learning difficulties and has been the victim of various forms of abuse. We argue that ethical dilemmas cannot be ov ercome solely by Ethical Codes or even predetermined 'good practice'. They are integral to the whole research process and necessitate contin uous explicit examination of decision making processes within research .