C. Jenkins et E. Bruera, ASSESSMENT AND MANAGEMENT OF MEDICALLY ILL PATIENTS WHO REFUSE LIFE-PROLONGING TREATMENTS - 2 CASE-REPORTS AND PROPOSED GUIDELINES, Journal of palliative care, 14(1), 1998, pp. 18-24
Patients who have chosen to have treatment withdrawn because of debili
tating conditions pose a special problem for palliative care. We repor
t on two such patients: patient 1 refused amputation of a gangrenous l
eg and patient 2 refused food and hydration after a series of strokes.
The management of these patients through the dying process is discuss
ed and guidelines are suggested. The criteria for competency include b
oth a general cognitive and psychiatric assessment as well as a specif
ic evaluation of the patient's ability to make the treatment withdrawa
l decision. Treatable symptoms which impair the patient's quality of l
ife and have an impact on the decision should be corrected. If a proxy
decides to withdraw therapy in an incompetent patient, this decision
should accord with the patient's known wishes and values as far as pos
sible. The beneficence of the decision may be assessed according to th
e disease process, degree of suffering, and risks of accepting treatme
nt. The complexity of these cases calls for a multidisciplinary approa
ch, and the palliative care team should work in collaboration with the
primary care treatment team.