GAINING CONTROL - FAMILY MEMBERS RELATE TO PERSONS WITH SEVERE MENTAL-ILLNESS

Decades of empirical research regarding families of persons with serio us mental illnesses has documented the stress and burden associated wi th the caregiving role. Recent changes in health care delivery have in creased responsibilities of family caregivers without appreciably alle viating their stress. The complexities of the caregiving role need to be investigated if effective interventions are to be realized. To date , a critical but understudied area of investigation is the meaning of this experience for family caregivers and how that meaning affects the ir responses to the caregiving role. The purpose of this interpretive study was to increase understanding of the meaning of caregiving that caregivers derived from ongoing interactions with the ill relative. In -depth interviews were conducted with 15 family caregivers of psychiat ric inpatients. Thematic analysis of the textual data revealed that th e meaning of caregiving was constituted by the following concerns. fin ding the essence of the person obscured by the illness, finding a plac e for self in influencing the illness, and helping the relative to mov e forward. (C) 1998 John Wiley & Sons, Inc.