Mk. Walker et al., VALIDATION OF PATIENT RECALL OF DOCTOR-DIAGNOSED HEART-ATTACK AND STROKE - A POSTAL QUESTIONNAIRE AND RECORD REVIEW COMPARISON, American journal of epidemiology, 148(4), 1998, pp. 355-361
Few studies have assessed the accuracy of patient recall of doctor-dia
gnosed heart attack and stroke on postal questionnaire, yet such data
are widely used in epidemiologic studies. In the national prospective
British Regional Heart Study of 7,735 men aged 40-59 years, based in g
eneral practice and followed up for a mean 13.8 years, a mailed questi
onnaire was sent to all available survivors in 1992, Patient recall of
doctor-diagnosed heart attack and stroke was compared with the 316 ne
w general practice-reported heart attacks and 102 new general practice
-reported strokes from the medical record reviews. Both study and gene
ral practice records were checked for all discordant findings, and cor
rections were made to the study database. Patients tended to overrecal
l major cardiovascular events more than they underrecalled them, 33% v
ersus 6% for heart attacks and 25% versus 11% for strokes. Among overr
ecalled heart attacks, other circulatory problems were present in 78%
of the subjects; transient ischemic attacks accounted for 57% of overr
ecalled strokes, In contrast, the general practice record review syste
m tended to underreport events rather than to overreport them, 3% vers
us 0.3% for heart attacks and 23% versus 5% for strokes, Patient recal
l of doctor-diagnosed heart attack and stroke provides a useful method
for estimating prevalence rates and resource needs, but the tendency
to overestimation needs to be recognized. In etiologic studies when st
rict diagnostic case criteria are essential, patient recall should be
used to complement rather than to supplant medical record data.