Pl. Sample et Ar. Darragh, PERCEPTIONS OF CARE ACCESS - THE EXPERIENCE OF RURAL AND URBAN WOMEN FOLLOWING BRAIN INJURY, Brain injury, 12(10), 1998, pp. 855-874
To examine care access among women with brain injuries, a qualitative,
phenomenological study was conducted. Twenty-one women with acquired
brain injuries were recruited for the inquiry, representing rural and
urban regions of Colorado. The phenomenological approach allowed the i
nvestigators to examine the shared experiences of women with brain inj
uries as they sought rehabilitative supports and services, and attempt
ed to re-enter their lives and communities. Each woman was interviewed
one or two times, the interviews were transcribed and then coded and
analysed by both authors separately. Thematic analysis of the data rev
ealed two major emergent themes: issues surrounding diagnosis and barr
iers to accessing care. A total of 10 women interviewed experienced di
fficulty obtaining a diagnosis of brain injury and experienced serious
personal and professional consequences as a result. All the women exp
erienced barriers to accessing care, including problems with service p
roviders and service systems, financial challenges, travelling for ser
vices, lack of information or services in their area, lack of care coo
rdination and funnelling. Some of the barriers cannot be changed secon
dary to cost, efficiency and logistics. Other barriers, could be chang
ed through education, training and policy making.