Ml. Baskin et al., PSYCHOSOCIAL CONSIDERATIONS IN SICKLE-CELL DISEASE (SCD) - THE TRANSITION FROM ADOLESCENCE TO YOUNG ADULTHOOD, Journal of clinical psychology in medical settings, 5(3), 1998, pp. 315-341
Sickle cell disease (SCD) occurs in 1 of every 400 to 500 African Amer
ican births. Despite its prevalence, there has been a relative dearth
of attention paid to SCD in the psychological literature. African Amer
ican SCD adolescents and young adults, individuals at an already vulne
rable developmental stage, are at increased risk for psychological dis
tress and psychosocial impairments (e.g, depression and low self-estee
m, poor social and academic/vocational functioning). Such difficulties
often result in problematic adherence to medical regimens, and thus r
epresent a potentially serious clinical and public health problem that
merits the attention of psychologists working in medical settings. Th
is article (I) reviews the psychosocial needs peculiar to SCD patients
transitioning from adolescence to young adulthood; (2) applies a cult
urally informed stress-coping-adjustment framework to assess and addre
ss the psychological status, psychosocial functioning and disease outc
omes of these individuals; and (3) describes a culturally and developm
entally sensitive, psychoeducational group intervention.