Although hospice care has been available in the United States for over 25 y
ears, the trend of late terminal access persists. Quality assessments and i
nterventions that mill continue through a year of bereavement are based on
early interactions and the formation of caring and trusting bonds. A qualit
ative research study was conducted to identify and describe barriers to tim
ely access as perceived by those involved in hospice care: caregivers, hosp
ice staff and volunteers, and referring physicians. Major findings include
persistent knowledge deficits including misconceptions and lack of awarenes
s of components and skill associated with hospice cars: reluctance to discl
ose, discuss, or acknowledge patient terminality, and access of hospice can
being perceived as giving up on the patient.