Barriers to accessing hospice services before a late terminal stage

Citation
Cb. Johnson et Sc. Slaninka, Barriers to accessing hospice services before a late terminal stage, DEATH STUD, 23(3), 1999, pp. 225-238
Citations number
13
Categorie Soggetti
Psycology
Journal title
DEATH STUDIES
ISSN journal
07481187 → ACNP
Volume
23
Issue
3
Year of publication
1999
Pages
225 - 238
Database
ISI
SICI code
0748-1187(199904/05)23:3<225:BTAHSB>2.0.ZU;2-T
Abstract
Although hospice care has been available in the United States for over 25 y ears, the trend of late terminal access persists. Quality assessments and i nterventions that mill continue through a year of bereavement are based on early interactions and the formation of caring and trusting bonds. A qualit ative research study was conducted to identify and describe barriers to tim ely access as perceived by those involved in hospice care: caregivers, hosp ice staff and volunteers, and referring physicians. Major findings include persistent knowledge deficits including misconceptions and lack of awarenes s of components and skill associated with hospice cars: reluctance to discl ose, discuss, or acknowledge patient terminality, and access of hospice can being perceived as giving up on the patient.