H. Linger et al., CONCEPTUAL DEVELOPMENT OF AN INFORMATION-SYSTEMS FRAMEWORK FOR IMPROVING CONTINUITY IN EPIDEMIOLOGIC RESEARCH, European journal of epidemiology, 14(6), 1998, pp. 587-593
Lack of continuity is a problem for survey-based epidemiological resea
rch. Poor access to experience and inadequate retention of information
means new projects seldom build on successful predecessors to the max
imum possible extent. We have designed a data management framework whi
ch addresses this problem using a well-known information systems appro
ach. Our ideas provide a means of storing data in a manner which refle
cts the original research concepts. This makes collected data accessib
le and understandable without reference to the questionnaire, and allo
ws new questionnaires to be designed quickly and easily. Our framework
provides a means for recording developmental, conceptual and other su
pporting information and documentation which is traditionally poorly c
onserved. We illustrate the components of the framework using a major
Australian epidemiological project as a case study. Once the necessary
software is developed, our framework will improve organisational memo
ry within individual research units and has the potential to become a
valuable support tool for survey-based research.