FAMILY RESPONSES TO HIV AIDS IN MEXICO

This paper presents findings from a qualitative study of household and community responses to HIV/AIDS in Mexico. Fieldwork took place in tw o contrasting settings: (a) Ciudad Netzahualcoyotl, a socially margina lized urban community and (b) the homosexual community of Mexico City, a sexually marginalized social network. 113 in-depth interviews were conducted with people with HIV/AIDS, their relatives and members of th eir social networks. This paper describes findings from interviews con ducted with family members of persons with AIDS. Four stages of respon se are identified and characterized within each community: (1) life be fore AIDS, (ii) life during the discovery of AIDS, (iii) living with a person with AIDS and (iv) surviving those who have died from AIDS. Th e social marginalization of both communities is central in explaining how families respond to the disease. In Ciudad Netzahualcoyotl, social support derives from a local culture of kinship. In the gay community , on the other hand, solidarity arises out of friendship. Between soci al support and discrimination, many more ''ambivalent'' behaviours (ne ither fully supportive nor discriminating) are displayed by family mem bers and friends. Fear, pre-existing family conflicts and prejudice nu rture these negative responses. Family responses and the processes to which they give rise, also differ depending on whether or not a male o r female household member is affected. Policy recommendations are made concerning how best to promote positive family and household response s to persons with HIV/AIDS and how to inhibit negative ones. (C) 1998 Elsevier Science Ltd. All rights reserved.