Gi. Szmukler et al., CARE-GIVING AND THE IMPACT ON CARERS OF A COMMUNITY MENTAL-HEALTH-SERVICE - PRISM PSYCHOSIS STUDY 6, British Journal of Psychiatry, 173, 1998, pp. 399-403
Background We examined caregiving activities in a population-based sam
ple of carers of sufferers from psychotic disorders; putative determin
ants of care-giving; and changes in care-giving in an intensive commun
ity psychiatric service.Methods In the PRiSM interview sample 170 peop
le had a carer; 124 were interviewed. Care-giving activities, dissatis
faction with these, and carers General Health Questionnaire (GHQ) scor
es were measured. Patient and illness characteristics were examined as
predictors of the carer measures. The carer measures were reassessed
for 62 carers after two years in two service sectors, one with an inte
nsive community service, the other with a standard service. Results Ov
erall, 36% of carers were engaged in no, or only occasional caregiving
activities. Fifty per cent expressed no dissatisfaction with their ca
re-giving role. Patient and illness characteristics predicted care-giv
ing poorly. Carers in the intensive community treatment sector did not
experience significantly different care-giving demands or distress th
an those in the standard se Conclusions A significant proportion of ca
rers of sufferers from psychosis do not engage in common care-giving a
ctivities, and are not dissatisfied with their role. An intensive comm
unity service did not affect the impact of the illness on carers.