To gather information regarding how to best assist liver transplant re
cipients in improving their self-care capacity and well-being, we inve
stigated their total health situation. A retrospective, cross-sectiona
l survey with up to a 10-year follow-up concerning experienced health
and quality of life after liver transplantation (LTX) was conducted. T
he aim of this study was to provide descriptive data on the experience
d health and health-related quality of life (HRQOL) after LTX and to e
valuate whether the pretransplantation medical conditions affected the
se parameters. All patients who had undergone LTX, were alive at the t
ime of the study, and had a follow-up of more than 6 months (n = 134)
were asked to complete three self-administered questionnaires. The res
ponse rate was 95% (n = 120). There was no correlation between pretran
splantation Child-Pugh score and HRQOL after LTX. Liver transplant rec
ipients were more limited in their physical health than healthy subjec
ts but were equal in social functioning and mental health. Twenty-six
percent suffered from severe bodily pain. A significant difference was
reported in all health areas, with the exception of vitality and soci
al functioning, between employed and unemployed transplant recipients.
Liver transplant recipients suffered from limited physical functionin
g many years after transplantation. Their social functioning and menta
l health were not negatively affected. This study emphasizes that bodi
ly pain and difficulties in performing regular activities because of p
hysical illness are problems frequently experienced by liver transplan
t recipients. Copyright (C) 1998 by the American Association for the S
tudy of Liver Diseases.