Objectives: To confirm, in a new sample, the value of our previously descri
bed procedure for identifying abnormal illness behaviour (AIB) in stroke re
habilitation patients, and to examine the relative effects of AIB, depressi
on, family functioning, knowledge of stroke, and expectations of rehabilita
tion on long-term rehabilitation outcome.
Design: A longitudinal design, with assessments on admission to and dischar
ge from rehabilitation, and six and twelve months after discharge.
Setting: The study was undertaken in the rehabilitation unit at Repatriatio
n General Hospital, in Adelaide, South Australia.
Subjects: Sixty twelve-month stroke survivors, residing in a family environ
ment, who had undergone an inpatient rehabilitation programme.
Main outcome measures: AIB was assessed using the Illness Behaviour Questio
nnaire, depression with the Zung Self-Rating Depression Scale, family funct
ioning with the McMaster Family Assessment Device, stroke knowledge with th
e Stroke Care Information Test, and expectations of rehabilitation with an
open-ended question. Functional outcome was assessed with the competence an
d performance assessments of the Australian ADL Index, and lifestyle activi
ties with the Frenchay Activities Index.
Results: Using our previously derived AIB classification rule, AIB cases sc
ored poorly on functional, social and psychological indicators. Further, cl
uster analysis of discharge data replicated the rule for identifying patien
ts with AIB. AIB was a strong predictor of functional competence and perfor
mance at rehabilitation discharge and both six and twelve months later, whi
le depression was associated with an inactive lifestyle at both six and twe
lve months. Greater stroke knowledge and clearer expectations of rehabilita
tion were associated with better functional outcome at discharge. Family fu
nctioning was strongly associated with lifestyle activities and ADL perform
ance at both six and twelve months.
Conclusions: The procedure for identifying AIB in this rehabilitation envir
onment appears to be robust. AIB was a key determinant of long-term.