Background: Most dying patients are treated by physicians in community prac
tice, yet studies of terminal care rarely include these physicians.
Objective: To examine the frequency of life-sustaining treatment use and de
scribe what factors influence physicians' treatment decisions in community-
based practices.
Methods: Family members and treating physicians for decedents 65 years and
older who died of cancer, congestive heart failure, chronic lung disease, c
irrhosis, or stroke completed interviews about end-of-life care in communit
y settings.
Results: Eighty percent of eligible family and 68.8% of eligible physicians
participated (N = 165). Most physicians were trained in primary care and 8
5.4% were primary care physicians for the decedents. Physicians typically k
new the decedent a year or more (68.9%), and 93.3%;, treated them for at le
ast 1 month before death. In their last month of life, 2.4% of decedents re
ceived cardiopulmonary resuscitation, 5.5% received ventilatory support, an
d 34.1% received hospice care. Family recalled a discussion of treatment op
tions in 78.2% of deaths. Most discussions (72.1%) took place a month or mo
re before death. Place of death, cancer, and having a living will were inde
pendent predictors of less aggressive treatment before death. Physicians be
lieved that advanced planning and good relationships were the major determi
nants of good decision making.
Conclusions: Community physicians use few life-sustaining treatments for dy
ing patients. Treatment decisions are made in the context of long-term prim
ary care relationships, and living wills influence treatment decisions. The
choice to remain in community settings with a familiar physician may influ
ence the dying experience.