Parents call for concerned and collaborative care

Citation
C. Stubblefield et Rl. Murray, Parents call for concerned and collaborative care, W J NURS R, 21(3), 1999, pp. 356-371
Citations number
23
Categorie Soggetti
Public Health & Health Care Science
Journal title
WESTERN JOURNAL OF NURSING RESEARCH
ISSN journal
01939459 → ACNP
Volume
21
Issue
3
Year of publication
1999
Pages
356 - 371
Database
ISI
SICI code
0193-9459(199906)21:3<356:PCFCAC>2.0.ZU;2-B
Abstract
Parents' perceptions and expectations of health care providers within the c ontext of the pediatric lung transplant experience were investigated using a phenomenological approach. Fifteen parents of 12 children were interviewe d Two theme clusters, concerned care and collaborative care, were formulate d. Themes that reflected parents' perceptions of concerned care included: b eing treated as an individual, seeing familiar faces, feeling that their ch ildren really mattered and conversely, experiencing a feeling of abandonmen t. Parents' perceptions of collaborative care included: being part of the t eam, and conversely, feeling caught in the middle. The theme cluster concer ned care, reflected the value parents place on continuity of care. Humanist ic nursing theory provided the link between study results and nursing pract ice.