Background: Patient education has been shown to be a key component in compr
ehensive heart failure management. Few data, however, are available regardi
ng patients' knowledge of and adherence to self-care recommendations for th
e disease.
Objectives: To assess the knowledge level of and adherence to self-care amo
ng patients with heart failure and to determine associated factors.
Methods: We conducted a needs-assessment survey among new patients visiting
a heart failure clinic from April 1997 through June 1998. Multiple linear
regression analysis was used to assess the factors predictive of patients'
knowledge level and adherence behaviors.
Results: Of the 113 patients surveyed, 77% were referred by cardiologists a
nd 60% had New York Heart Association class III or IV status. Two thirds of
the patients reported receiving information or advice about self-care from
health care providers. When asked how much they knew about congestive hear
t failure, however, 37% said;ia little or nothing," 49% said "some," and on
ly 14% said "a lot." Approximately 40% of the patients did not recognize th
e importance of weighing themselves daily and 27% weighed themselves twice
a month or less often. Although 80% of the patients knew they should limit
their salt intake, only one third always avoided salty foods. Additionally,
25% of the patients did not appreciate the risk of alcohol use and 36% bel
ieved they should drink a lot of fluids. The multiple linear regression ana
lysis indicated that a higher knowledge score was associated with being mar
ried, prior hospitalization, and having received both advice and informatio
n about self-care from physicians or nurses. A poor adherence behavior scor
e was associated with being unmarried, lower perceived self-efficacy, a lac
k of knowledge about self-care, and no prior hospitalization.
Conclusions: We observed a gap between patients receiving and absorbing or
retaining information on self-care for congestive heart failure supplied by
health care providers. Self-care education needs to be directed to outpati
ents in addition to inpatients.