Issues in implementing prenatal screening for cystic fibrosis: results of a working conference

Citation
Je. Haddow et al., Issues in implementing prenatal screening for cystic fibrosis: results of a working conference, J MED SCREE, 6(2), 1999, pp. 60-66
Citations number
46
Categorie Soggetti
Envirnomentale Medicine & Public Health
Journal title
JOURNAL OF MEDICAL SCREENING
ISSN journal
09691413 → ACNP
Volume
6
Issue
2
Year of publication
1999
Pages
60 - 66
Database
ISI
SICI code
0969-1413(1999)6:2<60:IIIPSF>2.0.ZU;2-E
Abstract
Objective-To summarise a conference convened to examine how cystic fibrosis screening might appropriately be introduced into routine prenatal practice . Methods-Participant included experts from various relevant disciplines. Sys tematic reviews and data from individual trials were presented; issues were identified and discussed. Results-Judged by published criteria, prenatal cystic fibrosis screening is suitable for introduction. Screening can be performed cost effectively by identifying racial/ethnic groups at sufficient risk and then using either o f two models for delivering laboratory services. Validated educational mate rials exist. Ethical issues are not unique. Conclusions-Once adequate facilities for patient and provider education, te sting, counselling, quality control, and monitoring are in place, individua l programmes can begin prenatal screening for cystic fibrosis.