The Caregiver Quality of Life Index-Cancer (CQOLC) scale: development and validation of an instrument to measure quality of life of the family caregiver of patients with cancer

Family caregivers have become increasingly responsible for providing home c are for cancer patients. Research has documented the distress of family car egivers; however, little has been done to evaluate the broader impact of ca regiving on quality of life (QoL). The objectives of this study were to eva luate the reliability and validity of the Caregiver Quality of Life Index-C ancer (CQOLC), a new self-report instrument. Two hundred and sixty-three fa mily caregivers of patients with lung, breast or prostate neoplasms partici pated. Test-retest reliability was 0.95 and internal consistency was 0.91. As expected, there were moderate correlations with overall mental health (r =0.64), emotional distress (r=-0.50 to -0.52), burden (r=-0.65) and patient 's performance status (r=-0.47) and low correlations with overall physical health (r=0.13), social support (r=0.22) and social desirability (r=0.08). These results show that increased overall mental health is associated with better QoL, while more emotional distress and worsening patient performance status are associated with poorer QoL. Thus, the CQOLC appears to possess adequate validity, test-retest reliability and internal consistency. Future directions include further evaluation of sensitivity to change and factor analysis to determine the principal health-related QoL domains evaluated by the CQOLC. Qual. Life Res. 8:55-63 (C) 1999 Kluwer Academic Publishers.