Objective: To investigate the attitudes of cognitively normal older adults
toward various life-sustaining procedures in the face of dementia.
Methods: Participants were 84 cognitively normal men and women (70% respons
e rate), 65 years and older, from a variety of urban and suburban settings,
including private homes, assisted-living apartments, transitional care fac
ilities, and nursing homes. In-person interviews were conducted with each p
articipant to obtain information about demographic characteristics, life an
d health, and desire for various life-sustaining procedures for 4 hypothesi
zed levels of dementia.
Results: Approximately three fourths of participants said they would not wa
nt cardiopulmonary resuscitation, use of a respirator, or parenteral or ent
eral tube nutrition with the milder forms of dementia, and 95% or more of p
articipants would not want these procedures with severe dementia. In additi
on, only one third or fewer participants thought they would want to be hosp
italized or given antibiotics if they were severely demented. Logistic regr
ession analysis showed a relationship between participants' desire for life
-sustaining procedures and having less education, greater independence, and
a higher perceived quality of life.
Conclusions: Most surveyed individuals did not desire life-sustaining treat
ments with any degree of dementia, and the proportion of individuals not de
siring such treatments increased with the projected severity of dementia. T
hese findings indicate a need for including dementia in advance directives
planning.